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imperial's projects and General State of Affairs announcement

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  14:55:42  15 May 2013
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hhiker
off to new worlds
(Resident)

 

 
On forum: 10/31/2008
Messages: 4290

---QUOTATION---

But, either way, it's all appreciated - thoughts, prayers, sacrifices, etc. Every little bit helps in some way or form, I think.
---END QUOTATION---



*tips the mug*
Does that help? I might sacrifice a doughnut later on
(For context - for several years now I've been closely involved in a reality where the question about next chemo isn't "if?" but "when?" and the routine checkups are part of normal functioning. Granted, i'm merely witnessing the process; still, over the years this world of inevitable regular treatment has become surprisingly ... manageable.)
  22:45:15  15 May 2013
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{imperialreign}
Звуковой Шаман
(Resident)

 

 
On forum: 10/29/2008
Messages: 3075
It's been ages since I've seen you around here, stalker! I assume the zone has been treating you well?

I'm actually curious about what you've been through and all, and how you've managed the journey... it all affects us differently, and even more-so based on what card out of the pack we're given. I know a few refractory folks who are now on "management," but my doctors want to push for cure first... meaning stem cell transplant. Something I'm truly not looking forward to.

But, if you're open to talking about and discussing things, please don't hesitate to shoot me an email (the link here should still work, I've never changed it - or you can get my facebook contact through TS). Sometimes trading stories about survival across an electronic campfire serve to warm the soul (and hands and feet) enough for another venture into the zone.

Best of luck to you, stalker, and good hunting!
  23:55:37  15 May 2013
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hhiker
off to new worlds
(Resident)

 

 
On forum: 10/31/2008
Messages: 4290

---QUOTATION---
It's been ages since I've seen you around here, stalker! I assume the zone has been treating you well?
---END QUOTATION---


That about sums it up
Felt like it was time to give back some (or "pay it forward" or something in that vein).


---QUOTATION---
I know a few refractory folks who are now on "management," but my doctors want to push for cure first... meaning stem cell transplant. Something I'm truly not looking forward to.
---END QUOTATION---



Yeah, doesn't exactly sound like fun procedure


---QUOTATION---
But, if you're open to talking about and discussing things, please don't hesitate to shoot me an email (the link here should still work, I've never changed it - or you can get my facebook contact through TS). Sometimes trading stories about survival across an electronic campfire serve to warm the soul (and hands and feet) enough for another venture into the zone.

---END QUOTATION---



I'll keep that in mind, thanks!
And all in all: wishing you the strength to make it work - wherever the pieces may fall.
  10:48:46  16 May 2013
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100RadsBar
100RadsBar - Formerly known as LoboTheMan
(Resident)

 

 
On forum: 06/03/2009
Messages: 1641

---QUOTATION---
I had hoped I'd never be back through it again as well... but, things aren't definitive, yet. I had a PET scan to measure metabolic activity of the nodes, and will get those results today... I'm also going to push for some form of biopsy to make absolutely certain it's cancerous, too. It could very well be enlargement from a UTI I've been fighting, and from my alcohol use over the last few months...

But, either way, it's all appreciated - thoughts, prayers, sacrifices, etc. Every little bit helps in some way or form, I think.
---END QUOTATION---



I am going to sacrifice a pig and a cow in your honor today.......Well basically eating a large burger with bacon for lunch
  14:36:36  22 May 2013
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{imperialreign}
Звуковой Шаман
(Resident)

 

 
On forum: 10/29/2008
Messages: 3075
Thanks, stalkers!

So, had a bone marrow and core needle biopsy yesterday, and am in quite a bit of pain from them. Lucky me, the sedatives they gave me didn't work in the least, and I was wide awake for the whole procedure. I hate marrow biopsies - absolutely barbaric procedure that isn't really known for helping or aiding the staging of disease.

Anyhow, I start treatment this Firday - we're using a newer antigen medication instead of actual chemo first. Currently planning on 3-4 treatments, then doing another scan to gauge effectiveness... if the scan returns poor, we'll change to a different regimen; if all looks good, we'll move onto the transplant procedure from there. I'll have a large volume catheter installed through my chest to an artery for cell harvesting and infusion, I'll receive one quick round of chemo followed by a drug to stimulate stem cell production from the bone marrow - that will be harvested, sent for treatment and chilled; then I'll be on to a week's worth of high-dose chemotherapy in the hospital to mop up any cancer that's left, and destroy the bone marrow. Few days later I'll receive the infusion of stem cells back, and it can take up to 2-3 weeks for engraftment from there. I'll probably need a few blood transfusions during this time, until such time that the "new" bone marrow is producing enough blood cells on it's own. It'll be closer to 3-4 months after infusion before I'm "back to normal," though could take much longer to actually feel normal again. Technically, I'm getting a "hard reset" of my body's immune system.

It would be an understatement to say that I'm over all this medical shit, lol.
  15:16:31  23 May 2013
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100RadsBar
100RadsBar - Formerly known as LoboTheMan
(Resident)

 

 
On forum: 06/03/2009
Messages: 1641

---QUOTATION---
Thanks, stalkers!

So, had a bone marrow and core needle biopsy yesterday, and am in quite a bit of pain from them. Lucky me, the sedatives they gave me didn't work in the least, and I was wide awake for the whole procedure. I hate marrow biopsies - absolutely barbaric procedure that isn't really known for helping or aiding the staging of disease.

Anyhow, I start treatment this Firday - we're using a newer antigen medication instead of actual chemo first. Currently planning on 3-4 treatments, then doing another scan to gauge effectiveness... if the scan returns poor, we'll change to a different regimen; if all looks good, we'll move onto the transplant procedure from there. I'll have a large volume catheter installed through my chest to an artery for cell harvesting and infusion, I'll receive one quick round of chemo followed by a drug to stimulate stem cell production from the bone marrow - that will be harvested, sent for treatment and chilled; then I'll be on to a week's worth of high-dose chemotherapy in the hospital to mop up any cancer that's left, and destroy the bone marrow. Few days later I'll receive the infusion of stem cells back, and it can take up to 2-3 weeks for engraftment from there. I'll probably need a few blood transfusions during this time, until such time that the "new" bone marrow is producing enough blood cells on it's own. It'll be closer to 3-4 months after infusion before I'm "back to normal," though could take much longer to actually feel normal again. Technically, I'm getting a "hard reset" of my body's immune system.

It would be an understatement to say that I'm over all this medical shit, lol.
---END QUOTATION---



Best of luck to you with the bone marrow transplant.
You will probably have to be isolated for a week or two after the procedure, since your immune-system is at zero after the transplant.
Here in Denmark they usually keep kids (and I guess adults also) who have a transplant in isolation for a couple of weeks, to protect them from infections.
  18:58:34  1 June 2013
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{imperialreign}
Звуковой Шаман
(Resident)

 

 
On forum: 10/29/2008
Messages: 3075
Yeah, that's pretty much how it goes here as well. I'll be receiving an auto, where they re-use my own cells, but the process of getting to that point is going to be a little rougher now. The bone marrow biopsy came back positive, so the presence of cancer in the marrow puts me at stage 4, and they're gonna have to hit me with some harder chemo and repeat the biopsy prior to harvesting.

If it comes back again positive, my options become very limited. Doing a donor transplant is essentially the last option available. It's extremely dangerous, toxic, and the cure rate is very low... plus, I'd have to worry about GvHD and HvGD, etc. That isn't a factor with an auto transplant.

But, the process will require 1 week of hospitalization for the 5-day chemo infusion, stem cell infusion 2-3 days after ending chemo, then up to 3 weeks in isolation until engraftment and blood counts start to re-bound. It can take up to 3-4 months for everything to get back to "normal." They can do an auto as out-patient, but it's a bit more dangerous... there's debate as to whether out-patient or in-patient is better.

Anyhow, not fun either way.
  21:33:06  5 June 2013
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100RadsBar
100RadsBar - Formerly known as LoboTheMan
(Resident)

 

 
On forum: 06/03/2009
Messages: 1641

---QUOTATION---
Yeah, that's pretty much how it goes here as well. I'll be receiving an auto, where they re-use my own cells, but the process of getting to that point is going to be a little rougher now. The bone marrow biopsy came back positive, so the presence of cancer in the marrow puts me at stage 4, and they're gonna have to hit me with some harder chemo and repeat the biopsy prior to harvesting.

If it comes back again positive, my options become very limited. Doing a donor transplant is essentially the last option available. It's extremely dangerous, toxic, and the cure rate is very low... plus, I'd have to worry about GvHD and HvGD, etc. That isn't a factor with an auto transplant.

But, the process will require 1 week of hospitalization for the 5-day chemo infusion, stem cell infusion 2-3 days after ending chemo, then up to 3 weeks in isolation until engraftment and blood counts start to re-bound. It can take up to 3-4 months for everything to get back to "normal." They can do an auto as out-patient, but it's a bit more dangerous... there's debate as to whether out-patient or in-patient is better.

Anyhow, not fun either way.
---END QUOTATION---



Lets hope that this year will be the year you finally beat that sucker.
So don't give up
  03:37:56  28 October 2013
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{imperialreign}
Звуковой Шаман
(Resident)

 

 
On forum: 10/29/2008
Messages: 3075
Well, after meandering about a bit, I've made my way back to spread my tale around the campfire...

Salvage treatments were successful, and put me back into remission... so, we proceed onward with transplant. After making it through the initial testing and such, I had since moved on to stem cell harvesting, and after nearly a month of recoup, I will be admitted to the hospital this Tuesday for stem cell transplant...

6 straight days of high-dose chemotherapy, followed soon thereafter by infusion of my previously collected stem cells - then about 2 weeks to make sure my blood counts recover and that engraftment has taken place. I'm looking at nearly 4 weeks stuck in a hospital, facing down the strongest chemo I've yet to receive.

It's not exactly high on my bucket list, for sure, but I've little choice in the matter.

As it stands, I haven't forgotten about the rest of the stalker crews out there - I just haven't really had the time to focus on any projects. I've been in a state of limbo, sadly.

I'll continue to keep everyone posted, though
  07:01:56  28 October 2013
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Storm Shadow
A machine, a Shadow Machine.
(Resident)

 

 
On forum: 11/14/2007
Messages: 1421
hang tight champion
 
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