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imperial's projects and General State of Affairs announcement

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  20:50:32  30 October 2011
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{imperialreign}
Звуковой Шаман
(Resident)

 

 
On forum: 10/29/2008
Messages: 3075
Much thanks, guys! . . . and no worries, I'm not going anywhere anytime soon!
  22:16:22  30 October 2011
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Meltac
messing with code
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On forum: 01/21/2010
Messages: 1519
I've already lost several of my relatives to cancer, due to ineffective chemo and other treatments - so it's good to hear that that stuff works for you! Good luck man, and get well soon!
  02:33:24  23 December 2011
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{imperialreign}
Звуковой Шаман
(Resident)

 

 
On forum: 10/29/2008
Messages: 3075
It's been a while, so I thought I'd give everyone another update (for those that aren't in fleeting contact with me via facebook or Steam):

I just recently finished up the 3rd cycle of treatment. After the second, a handful of minor medical issues cropped up, which required us to keep pushing the 3rd treatment back again and again - it ended up being 8 weeks between cycle 2 and 3. Just prior to the 3rd treatment, I had another CT to re-evaluate the disease, and there was no noticeable change since the CT just after the 2nd (so no disease progression in that time), which is great news as well. At least the cancer isn't becoming resistant to the chemo.

Due to the amount of interim time, though, we're now planning on 4 cycles instead of the original 3. My 4th ins't slated fo another 3-4 weeks, though, so I get some rest time in between . . . and then we'll be starting to head towards transplant.

I've been starting to become a little apprehensive about the transplant, though, and am planning on seeking a second opinion about my current state/condition, and whether transplant might even be necessary . . . I may push for the wait and watch approach once we're done with the salvage treatments. I don't really see a point in being subjected to the many risks of stem cell transplant, if my particular case might not actually need it . . . I guess we'll see . . .

But, anyhow, I'm kicking and am in pretty good health. I don't have the same strength and stamina I did 3 months ago, prior to starting any treatments, but I don't feel run-down and worn out from the treatments, either. Right now I feel quite good, in fact.
  11:26:29  23 December 2011
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SacriPan
Senior Resident
 

 
On forum: 09/20/2009
Messages: 319
Hey IR,

Good to read from you again. I hope santa will bring you a special gift for Xmas.

Be strong, play S.T.A.L.K.E.R., have faith, play S.T.A.L.K.E.R., be back, and... mod S.T.A.L.K.E.R. again.


Merry Christmas to all the community!
  18:26:00  20 March 2012
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100RadsBar
100RadsBar - Formerly known as LoboTheMan
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On forum: 06/03/2009
Messages: 1641
Just bumping the thread

How is everything going with the treatments and all that.

I hope things are going as planned/hoped for?
  18:36:12  20 March 2012
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{imperialreign}
Звуковой Шаман
(Resident)

 

 
On forum: 10/29/2008
Messages: 3075
Thanks for the bump, lobo1 Sorry, I had just simply gotten side tracked, I guess, and damn near forgot about this thread, lol

Things are going decent. Since Dec, I've had two more cycles of chemo - I've decided for the time being to hold off on transplant. I'm in a fairly rare situation having relapsed outside of 5 years, so after a lot of thought, deliberation and additional opinions from experts, I had decided to attempt to beat this with chemo alone - there's a good possibility of cure for me as it is. If I should happen to relapse after treatment, transplant will still be a viable option . . .

But, some of that will also be depending on how the upcoming PET scan looks like. We should have that scheduled within the next coupla weeks, and it'll help to determine how things look now in terms of metabolic activity. If the scan looks good, I believe we plan one more cycle of chemo, then taking a watch & wait approach. We'll re-scan every 3-4 months, and keep an eye out for any disease progression.

Otherwsie, I'm doing quite fine. I still feel generally fatigued, which is to be expected, but I'm still handling treatments quite well, with little adverse side effects.
  21:50:16  20 March 2012
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100RadsBar
100RadsBar - Formerly known as LoboTheMan
(Resident)

 

 
On forum: 06/03/2009
Messages: 1641

---QUOTATION---
Thanks for the bump, lobo1 Sorry, I had just simply gotten side tracked, I guess, and damn near forgot about this thread, lol

Things are going decent. Since Dec, I've had two more cycles of chemo - I've decided for the time being to hold off on transplant. I'm in a fairly rare situation having relapsed outside of 5 years, so after a lot of thought, deliberation and additional opinions from experts, I had decided to attempt to beat this with chemo alone - there's a good possibility of cure for me as it is. If I should happen to relapse after treatment, transplant will still be a viable option . . .

But, some of that will also be depending on how the upcoming PET scan looks like. We should have that scheduled within the next coupla weeks, and it'll help to determine how things look now in terms of metabolic activity. If the scan looks good, I believe we plan one more cycle of chemo, then taking a watch & wait approach. We'll re-scan every 3-4 months, and keep an eye out for any disease progression.

Otherwsie, I'm doing quite fine. I still feel generally fatigued, which is to be expected, but I'm still handling treatments quite well, with little adverse side effects.
---END QUOTATION---



Good to hear that things are going the right way
What kind of chemo are you getting?

My son got Methotrexate Intravenous during the last part of his treatments for his leukaemia.
  22:16:43  20 March 2012
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Kaidonni
First the Zone, then the world!
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On forum: 08/30/2008
Messages: 1072
Glad to hear that things are progressing well.
  00:16:14  21 March 2012
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{imperialreign}
Звуковой Шаман
(Resident)

 

 
On forum: 10/29/2008
Messages: 3075

---QUOTATION---
Good to hear that things are going the right way
What kind of chemo are you getting?

My son got Methotrexate Intravenous during the last part of his treatments for his leukaemia.
---END QUOTATION---



I'm on the same regimen since last October. ICE - Ifosfamide, Carboplatin and Etoposide (VP-16).

Years ago I went through ABVD (adriamycin, bleomycin, vinblastine, dacarbazine). Considering I relpase outside of 5 years, which is rare, we would've gone with ABVD again (the new thinking for late-relapse patients is to treat as a second occurance, and go through frontline therapy again), but, I already have some long-term effects from that therapy - early heart disease, vascular disease (I've already had a saphenous vein ablation performed for this), etc. - so, my oncologist wanted to avoid further complications with the adriamycin. Instead we went with ICE, which doesn't have as damaging of long-term side effects, won't be as rough on my heart, but instead (like all salvage therapy) runs a higher risk for long-term secondary cancers (mostly leukemia, or another blood cancer disorder).

The thing is, though, thanks to some peripheral complications after the 2nd cycle which required minor surgeries, I haven't had an "ideal" treatment schedule. We ended up with 8 weeks in between cycles 2 and 3, and another 8 in between 3 and 4. We originally planned on 3 cycles of ICE (which is normal, 2-4 is the average), but have since had to stretch it out to 6. 3 and 4 were almost "maintenance" cycles. I just completed 5 last week (3 weeks after 4). Usually there's at least 21 days between cycles because of how hard ICE hits the blood counts.

So, we'll see. CTs have been good and continue to show regression of masses . . . but, I'm wondering if we're starting to show scar tissue. This sub-type of hodgkin's is notorious for leaving "residual masses" that will slowly grow smaller over time . . . the only way to know for sure is with a metabolic scan (PET), which we still haven't done yet . . . so, I am getting a little anxious over that
  07:28:23  21 March 2012
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Daemonion
All About Audio
(Resident)

 

 
On forum: 09/27/2011
Messages: 567
Hoping for the best!
 
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